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Our Commitment to Families

We are committed to supporting families.

Regardless of makeup, income, or background, all families should and deserve to expect more - more support, more guidance, and better health.

Families are at the center of all that we do. We partner with them, so that family experiences are reflected in our work. Committed to supporting them as they navigate the genetics healthcare delivery system, we ensure that families are getting actionable, digestible information to feel empowered in their healthcare decisions. 

 

Advisory Committee

The Advisory Committee supports the Family Center in ensuring strong family-professional partnerships and that families are central to the genetic healthcare delivery systems around the nation and U.S. Territories.

The committee consists of one family representative from each of the seven Regional Genetic Networks.

Workgroup on Inclusion

To work toward meaningful change to eliminate inequities in the delivery of genetics healthcare, it is essential that the culture of our organization, leadership, and workgroups is diverse, equitable, and inclusive.

The Family Center Workgroup on Inclusion (FCWI) asks the hard questions and engages in the difficult conversations to identify inequities and barriers to inclusion so that we can address them and achieve a more inclusive and vibrant community. The FCWI’s develops products, resources, and trainings to help the Family Center ensure that families are central to U.S. genetic health care delivery systems.

  • Michael Allen 
  • Charmaine Brown
  • Valerie Colavecchio
  • Sarita Edwards 
  • Linda Starnes 
  • Marie Torres Perez

About

The National Genetics Education and Family Support Center (Family Center) provides tools and resources to support family engagement and genetic services.

Contact info

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

[email protected]org