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The Journey Through Diagnosis

The Midwest Regional Genetics Network created this guide to support families of children with a genetic condition.

Connect with Local Resources

Find assistance in linking with genetic services with your Regional Genetics Network.

Understanding Disparities in Genetics Services

A podcast-style engagement session to learn more about disparities in genetic services.

Disease InfoSearch

Database of over 10,000 conditions to help you learn more about your condition and connect with support groups.


Discover tools and strategies for advocating for whatever you may need.


Obtain resources and information that are universal to the genetics health care system.

Find a Genetic Clinic

ACMG's "Find a Genetics Clinic" allows individuals to search for genetics clinics across the United States.

Telegenetics Infographic

An infographic explaining telegenetics visits.


The National Genetics Education and Family Support Center (Family Center) provides tools and resources to support family engagement and genetic services.

Contact info

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

[email protected]