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Family Leadership Hub

Family Leadership Hub


These resources are designed to help families of children with a genetic condition navigate and lead within their families and the genetics healthcare delivery system. Learn more through blog posts, videos, and interactive learning modules.

Choose your area of interest below to see the resources for each section: Individual, Family, Community, and Sistémico.

Your voice is valuable! If you'd like to share your story (via blog or video) to benefit other families of children with a genetic condition, please contact Molly Martzke, Senior Program Manager, at [email protected].


Understand and embrace your own capacity for leadership.


Navigate the journey to a diagnosis and leading within your family.

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The National Genetics Education and Family Support Center (Family Center) provides tools and resources to support family engagement and genetic services.

Contact info

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

[email protected]