These resources are designed to help families of children with a genetic condition navigate and lead within their families and the genetics healthcare delivery system. Learn more through blog posts, videos, and interactive learning modules.

Choose your area of interest below to see the resources for each section: Individual, Family, Community, and Systems.

Your voice is valuable! If you'd like to share your story (via blog or video) to benefit other families of children with a genetic condition, please contact Molly Martzke, Senior Program Manager, at [email protected].