“We found a gene mutation. It’s called Cowden’s Syndrome. We know it's not right, but we really don’t know what it means.” That statement was supposed to answer our questions and give us some idea of our future. Instead, it told us nothing but a name...”

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“Five years ago, during my first week at a new job, I received a phone call from my daughter's genetic counselor. "Is this a good time to talk?" I knew that this phone call could bring an end to a three-year search.”

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"I recommend that families find what works. It will look different for different families. I am typically introverted and have never been keen on sharing my personal life on social media; I found that smaller communities worked better for us."

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"I recommend that families find what works. It will look different for different families. I am typically introverted and have never been keen on sharing my personal life on social media; I found that smaller communities worked better for us."

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In this interactive virtual learning module, you will: Understand the importance of giving yourself time to process your experience and find community, recognize how to find information and make medical decisions and Identify next steps in your ongoing journey.

Complete the module here

In this interactive virtual learning module, you will: Understand the importance of giving yourself time to process your experience and find community, recognize how to find information and make medical decisions and Identify next steps in your ongoing journey.

Complete El Módulo Aquí