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  • Welcome to the
    National Genetics Education
    and Family Support Center
    Learning about and participating
    in the genetics delivery system can be overwhelming –
    but it doesn’t have to be.
    Read More
  • Your
    Genetics
    Journey
    Wherever you start, this is your journey
    to better understand your health and to find
    helpful resources along the way.
    Where are you in your genetics journey?
  • Understand
    Genes
    and Genetics
    Genes are the instructions for life
    as we know it.
    Learn More Here
  • Our
    Commitment
    to Families
    Families deserve to expect more -
    more support, more guidance, and
    better health.
    Learn More Here

About Us

The National Genetics Education and Family Support Center (Family Center) works to increase access to genetic services by promoting and strengthening family engagement in the genetic health care delivery system.

Learning about and participating in the genetics delivery system can be overwhelming – but it doesn’t have to be. Our information and resources are broken down to meet you where you are. Whether you’re interested in learning more about hereditary patterns, your genetic condition, or leadership opportunities, we have it here for you.

 
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About Us
About Us
About Us

Understanding Genes and Genetics

Genetics is the study of how different qualities, called traits, are passed down from biological parents to their biological children. Genes are the instructions to life as we know it.

Genes affect your development before you're even born and play a role in everything from your appearance to your personality. Genes contain information about your racial and ethnic background and your risk for certain diseases. Understanding your genes is part of understanding yourself, and you can use information about genetics to make decisions in your daily life.

 
Start Here
Learn About Genetics
Learn About Genetics
Learn About Genetics

Your Genetics Journey

Your genetics journey can start by receiving a diagnosis, learning about your family history, or undergoing a screening. Wherever you start, this is your journey to better understand your health and to find helpful resources along the way.

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Navigate Your Genetics Journey
Navigate Your Genetics Journey
Navigate Your Genetics Journey
Learn More

Meet Family Leaders, Just like you.

In 2023, the national family center gathered leaders from across the country to share their stories. 

These face-to-face accounts are designed to empower and help individuals and families of children with a genetic condition.  Each story and account is unique.  Together, we break them down into four common themes: definition of a leader, advice for future leaders, navigating common struggles, and solutions.

Listen to and meet family leaders here.
Get in Touch

Contact us for any information

Address

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

Phone

202-966-5557

Email

[email protected]

Contact Info

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

[email protected]

Understand Genes and Genetics

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $400,000 with 0 percent financed with nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.

About

The National Genetics Education and Family Support Center (Family Center) provides tools and resources to support family engagement and genetic services.

Contact info

4301 Connecticut Ave NW Suite 404 Washington, DC 20008-2369

[email protected]