Resources
Grupo de trabajo sobre inclusión del centro familiar
Consejos y aspectos destacados para familias.
Family Center Work Group on Inclusion
Tips and highlights for families
Para Entender Sus Genes
Una guía para el asesoramiento genético.
Making Sense of Your Genes
A guide to Genetics.
Understanding Family Engagement in Genetics Services
"Engagement is a full scope of practice from the individual, to clinical, to systems level with family and patients a
From Clinical to Casual: Understanding the Importance of Language in Genetics
An engaging discussion where family leaders discuss the importance of language in genetics.
Your Genetics Journey: Referral to Genetics
A genetic counselor breaks down what it's like to be referred to a genetics service.
Your Genetics Journey: Screening
A genetic counselor breaks down screening for you.
Your Genetics Journey: Family Health History
A genetic counselor breaks down what you need to know about family health history.
Different Paths: Journeys to Becoming a Family Leader in the Genetics System
An engaging session where family leaders shared what leadership means to them and how to foster it with others.
The Journey Through Diagnosis
The Midwest Regional Genetics Network created this guide to support families of children with a genetic condition.
Connect with Local Resources
Find assistance in linking with genetic services with your Regional Genetics Network.
Understanding Disparities in Genetics Services
Disease InfoSearch
Database of over 10,000 conditions to help you learn more about your condition and connect with support groups.
AdvocacyAtlas
The NCC
Obtain resources and information that are universal to the genetics health care system.
